Equity in Biomedicine Seminar Series
“Missing Sequences: Why just increasing diversity in genome science is not enough”
Watch a recording:
Increasing diversity in large-scale studies of human genetic variation is important in understanding disease and identifying new potential drug targets. In this conversation from March 31, 2021, Keolu Fox and Heidi Rehm discuss how to achieve this goal in an ethical and equitable way. They discuss why understanding colonial legacies of exploitation of indigenous communities are important in identifying solutions. What are productive and authentic ways that scientists can engage with indigenous communities? How can we create new research models that can be most impactful for indigenous communities? As we move towards a future of precision medicine, how can we center equity and inclusion to guide the trajectory of that innovation?
About the speaker
Keolu Fox, Ph.D. (PI), Kānaka Maoli (Native Hawaiian) is an Assistant Professor at UC San Diego, affiliated with the Department of Anthropology, the Global Health Program, the Halıcıoğlu Data Science Institute, the Design Lab, the Climate Action Lab, and the Indigenous Futures Lab. Dr. Fox has published numerous articles in the fields of human genetics, biomedicine, ancient genomics, and Indigenous data sovereignty (IDS), and is a recipient of grants from organizations including the NIH, the National Science Foundation, National Geographic, the American Association for Physical Anthropology, Emerson Collective, the Social Science Research Council and the MIT SOLVE Initiative. Over the last decade, Dr. Fox has become a world expert in building technological independence in Indigenous communities and has been recognized as a thought leader in the field of IDS by Indigenous community leaders and the National Congress for the American Indian, The Office of Hawaiian Affairs, the World Economic Forum, TED, National Geographic, IBM, the Chan Zuckerberg Initiative and more. Dr. Fox regularly teaches global health and CBPR courses and is passionate about training the next generation of Indigenous data scientists through grassroots initiatives like the Summer Internship for Indigenous peoples in Genomics.
About the Indigenous Futures Lab (IFL)
The IFL is an interdisciplinary project focused on advancing sustainable development goals using designs co-created by biotechnology and Indigenous guardianship. In partnership with Indigenous communities across the globe, the IFL facilitates incubator programs designed to prototype novel applications of Indigenous sustainability practices.
About the Equity in Biomedicine Seminar Series (EBM)
EMB is an institute-wide interactive meeting that focuses on critical issues related to equity and representation in biomedical research, especially as it applies to genomics research and precision medicine. Speakers dive into the equal or unequal social implications of their work: Who is affected? How are they affected? Why? The overall goal of this series is to foster discussions about equity and inspire Broad scientists and trainees to reflect on the social impact of their own research.
The EBM series is sponsored by the IDEA Office; each event in the series is presented by one or more Broad scientific groups in collaboration with Shades@Broad and the organizing committee. Current members of the organizing committee include Mireille Kamariza, Alham Saadat, Namrata Sengupta, Patrick Turley, Alex Bloemendal, and Bronwyn MacInnis. For more information about the EBM series or to nominate a future seminar speaker, contact Mireille Kamariza.